PSYCHOMETRICAL CHARACTERISTICS OF RUSSIAN VERSIONS OF PEDSQL RHEUMATOLOGY MODULE AND PEDSQL GENERIC CORE SCALE QUESTIONNAIRES FOR THE ESTIMATION OF QUALITY OF LIFE OF CHILDREN AGED FROM 2 TO 4 YEARS OLD WITH JUVENILE RHEUMATOID ARTHRITIS
Abstract
Key words: children, juvenile rheumatoid arthritis, quality of life, ped SQL rheumatology module, ped SQL generic core scale, infliximab.
About the Authors
R.V. DenisovaRussian Federation
V.Yu. Al'bitsky
Russian Federation
E.I. Alexeeva
Russian Federation
I.V. Vinyarskaya
Russian Federation
S.I. Valieva
Russian Federation
T.M. Bzarova
Russian Federation
A.O. Lisitsin
Russian Federation
E.Yu. Gudkova
Russian Federation
K.B. Isaeva
Russian Federation
A.M. Chomakhidze
Russian Federation
References
1. Новик А.А., Ионова Т.И., Кайнд П. Концепция Исследования качества жизни в медицине. СПб.: Элби. 1999. 140 с.
2. Quality of life and pharmacoeconomics in clinical trials. Ed. Spilker B. 2nd Edition. Philadelphia: New- York Lippincott-Raven. 1996. 1259 p.
3. Quality of life assessment in clinical trials. Ed. M.J. Staquet. Oxford: University Press: 1998. 360 p.
4. Andersson Gare B. Quality of life in pediatric rheumatology – methodological and clinical aspects. Ann. Rheumatology Dis. 2001; 60 (suppl. 11): 53.
5. Алексеева Е.И., Валиева С.И., Апаева Д.В., Бзарова Т.М., Исаева К.Б. Эффективность пульс-терапии метотрексатом с циклоспорином при тяжелом системном варианте ювенильного ревматоидного артрита. Вопросы современной педиатрии. 2008; 7 (1): 29–35.
6. Алексеева Е.И., Алексеева А.М., Бзарова Т.М., Валиева С.И., Афонина Е.Ю. Эффективность лечения инфликсимабом резистентных форм ювенильного ревматоидного артрита. Вопросы современной педиатрии 2006; 2: 20–30
7. Nikishina I., Ruperto N., Shelepina T., Illarionova O., Salougina S., Borodacheva O. The Russian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnare (CHQ). Clin. Exp. Rheumatology. 2001; 19 (Suppl. XIII): 131–135
8. Кузьмина Н.Н., Никишина И.П., Шайков А.В., Руперто Н., Шелепина Т.А., Салугина O. С. Российский адаптированный вариант опросников для оценки качества жизни и состояния здоровья детей с ювенильными хроническими артритами. Научно-практическая ревматология. 2002; 2: 40–47.
9. Новик А.А., Ионова Т.А., Никитина Т.П. Концепция исследования качества жизни в педиатрии. Педиатрия. 2002; 6: 83–88.
10. Singh G., Athreya B., Fries J.F., Goldsmith D.P. Measurement of health status in children with JRA. Arthr. Rheum. 1994; 37: 1761–1769.
11. Varni J.W., Seid M., Kurtin P.S. Pediatric health related quality of life measurement technology: A guide for health care decision makers. J. Clin. Outcomes Manag. 1999; 6 (4): 33–40.
12. Varni J.W., Seid M., Kurtin P.S. The PedsQL™ 4.0 Measurement model for the Pediatric Quality of Life Inventory Version 4,0. Quality of life News Letter. 1997; 3: 4–10.
13. Varni J.W., Seid M., Kurtin P.S.: The PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Med. Care. 2001; 39 (8): 800–812.
14. Varni J.W., Seid M., Rode C.A. The PedsQL™: Measurement model for the Pediatric Quality of Life Inventory. Med. Care. 1999; 37: 126–139.
15. Matza L.S., Swensen A.R., Flood E.M., Secnik K., Leidy N.K. Assessment of health related quality of life in children: A review of conceptual, methodological, and regulatory issue. Value in Health. 2004; 7: 79–92.
16. Varni J.W., Seid M., Knight T.S., Uzark K., Szer I.S. The PedsQL™ 4.0 Generic Core Scales: Sensitivity, responsiveness, and impact on clinical decision making. J. Behav. Med. 2002; 25: 175–193.
17. Varni J.W., Burwinkle TM, Seid M, Skarr D: The PedsQL™ 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambul. Pediatr. 2003; 3: 329–341.
18. Brunner, Hermine I, Edward H., Giannini. Health related quality of life in children with rheumatic diseases. Current Opinion in Rheumatology. 2003; 15(5): 602–612.
19. Varni J.W., Seid M., Knight T.S., Burwinkle T.M., Brown J., Szer I.S. The PedsQL™ in pediatric rheumatology: Reliability, validity, and responsivenessof the Pediatric Quality of Life Inventory™ Generic Core Scales and Rheumatology Module. Arthritis Rheum. 2002; 46: 714–725.
20. Cronbach LJ: Coefficient alpha and the internal structure of tests. Psychometrika. 1951; 16: 297–334.
Review
For citations:
Denisova R., Al'bitsky V., Alexeeva E., Vinyarskaya I., Valieva S., Bzarova T., Lisitsin A., Gudkova E., Isaeva K., Chomakhidze A. PSYCHOMETRICAL CHARACTERISTICS OF RUSSIAN VERSIONS OF PEDSQL RHEUMATOLOGY MODULE AND PEDSQL GENERIC CORE SCALE QUESTIONNAIRES FOR THE ESTIMATION OF QUALITY OF LIFE OF CHILDREN AGED FROM 2 TO 4 YEARS OLD WITH JUVENILE RHEUMATOID ARTHRITIS. Current Pediatrics. 2008;7(5):39-45.
Email this article 
