On the Prospects for Child Disability Prevention Research
https://doi.org/10.15690/vsp.v17i6.1972
Abstract
The presented review of the special literature data (on MEDLINE and eLIBRARY.RU databases) makes it possible to determine a number of topical issues for preventing child disability as well as trends of scientific research in this area, taking into account the causes of disability and its structure by the underlying disease. The World Health Organization has established a relentless focus on the problem of disability, including that of children, which is reflected in the continuous improvement of methods for assessing and classifying persistent disabilities. It has been shown that the prevention of disability in children and the support of families raising handicapped children and children with disabilities are among the main priorities of the state social policy of the Russian Federation. The data on modern technologies for reducing the genetic burden in the population from the perspective of prevention of hereditary and congenital diseases, including orphan ones, has been presented. The results of studies indicating the increasing role of the intestinal microbiota in the development and prevention of a number of diseases affecting the formation of disability in children have been presented. The problem of combating antibiotic resistance is considered from a preventive perspective. A number of scientific studies is devoted to non-infectious pathology, which is becoming increasingly important in the formation of disability in children of different age groups, starting from the neonatal period. The actual data on the role of obesity in the formation of serious health disorders has been given. The opinion is expressed on the need to create a system of hygienic and medico-psychological safety of children's life in conditions of hyperinformatisation and the modern environmental situation. It is assumed that the implementation of the results of the proposed research into health care practice will make it possible to influence the processes of disability in a child on a deeper pathogenetic level as well as to improve the arrangement of preventive activities in this direction.
Keywords
About the Authors
Alexander A. BaranovRussian Federation
Disclosure of interest: Not declared
Rimma N. Terleckaya
Russian Federation
+7 (495) 967-15-71
Disclosure of interest: Not declared
References
1. Baranov AA, Al’bitskii VYu, Zelinskaya DI, et al. Invalidnost’ detskogo naseleniya Rossii. Moscow: Tsentr razvitiya mezhsektoral’nykh programm; 2008. 240 р. (In Russ).
2. International classification of impairments, disabilities and handicaps (ICIDH). A manual of classification relating to the consequences of disease [Internet]. Geneva: WHO; 1980. 207 р. [cited 2018 Sep 12]. Available from: http://apps.who.int/iris/ bitstream/handle/10665/41003/9241541261_eng.pdf.
3. International classification of functioning, disability and health. ICF [Internet]. Geneva: WHO; 2001. 303 р. [cited 2018 Sep 19] Available from: https://psychiatr.ru/download/1313?view=name=CF_18.pdf.
4. International classification of functioning, disability and health: children & youth version: ICF-CY [Internet]. Moscow: WHO; 2016. 241 р. (In Russ). Доступно по: http://apps.who.int/iris/bitstream/handle/10665/43737/9789244547328_rus.pdf?sequence=12. Ссылка активна на 10.09.2018.
5. Kaz’min AM, Perminova GA, Chugunova AI. Prikladnoe znachenie Mezhdunarodnoi klassifikatsii funktsionirovaniya, ogranichenii zhiznedeyatel’nosti i zdorov’ya detei i podrostkov (kratkii obzor literatury). Klinicheskaya i spetsial’naya psikhologiya. 2014;3(2):103–118. (In Russ).
6. Romanova ZA, Naumenko LL The use of the International Classification of Functioning, Disability and Health for the examination of children and adolescents. Medico-social expert evaluation and rehabilitation. 2014;(1):51–56. (In Russ).
7. Shoshmin AV, Besstrashnova YaK, Kozhushko LA. Implementation of the International classification of functioning, disability and health to organize medical and social care for children with cerebral palsy. In: (Conference proceedings) VI Baltiiskii kongress po detskoi nevrologii. St. Petersburg; 2016. pр. 400–402. (In Russ).
8. НNefedieva DL, Bodrova RA. The use of International classification of functioning, disability and health for the assessment of rehabilitation and abilitation in premature infants. Vestnik Ivanovskoi meditsinskoi academii. 2016;21(1):40–44. (In Russ).
9. Baranov AA, Al’bitskii VYu, Namazova-Baranova LS, Terletskaya RN. Sostoyanie zdorov’ya detei sovremennoi Rossii. Seriya «Sotsial’naya pediatriya». Issue 20. Moscow: Pediatr; 2018. 120 р. (In Russ).
10. Problemy detskoi invalidnosti v perekhodnyi period v stranakh TsVE/SNG i Baltii: tochka zreniya «Innochenti». Florence: UNISEF, Innochenti; 2005. 70 р. (In Russ).
11. Andreeva LP, Kuleshov NP, Mutovin GR, et al. Nasledstvennye i vrozhdennye bolezni: vklad v detskuyu zabolevaemost’ i invalidnost’, podkhody k profilaktike. Pediatriya. 2007;86(3):8–14. (In Russ).
12. Wilson-Costello D, Friedman H, Minich N, et al. Improved survival rates with increased neurodevelopmental disability for extremely low birth weight infants in the 1990s. Pediatrics. 2005;115(4): 997–1003. doi: 10.1542/peds.2004-0221.
13. Grabar’ VV, Fes’kov AM, Zhilkova ES, Blazhko EV. Vliyanie preimplantatsionnoi geneticheskoi diagnostiki na techenie, iskhod beremennosti i sostoyanie zdorov’ya detei pervogo goda zhizni. Perinatologiya i pediatriya. 2010;(4):872. (In Russ).
14. Problemy i perspektivy preimplantatsionnoi geneticheskoi diagnostiki khromosomnykh boleznei. In: Molekulyarno-biologicheskie tekhnologii v meditsinskoi praktike. Ed by Bravve Yu.I., Puzyrev V.P., Baranov V.S., et al. Issue 24. Novosibirsk: Akademizdat; 2016. pp. 114–119. (In Russ).
15. Shlepotina NM. Rol’ preimplantatsionnoi geneticheskoi diagnostiki pri provedenii ekstrakorporal’nogo oplodotvoreniya. In: (Conference proceedings) Innovatsii v obrazovanii i meditsine: materialy III Vserossiiskoi nauchno-prakticheskoi konferentsii s mezhdunarodnym uchastiem. Makhachkala; 2016. pр. 254–256. (In Russ).
16. Syreeva VD, Tyutyunnikova EB. Preimplantatsionnaya diagnostika kak odin iz metodov vyyavleniya nasledstvennykh boleznei. In: (Conference proceedings) Priority directions of science and education development: sbornik materialov III Mezhdunarodnoi nauchno-prakticheskoi konferentsii. Cheboksary; 2017. pр. 33–35. (In Russ).
17. Baranov AA, Namazova-Baranova LS, Terleckaya RN, Antonova EV. Problems of children’s disability in modern Russia. Annals of the Russian academy of medical sciences. 2017;72(4):305–312. (In Russ). doi: 10.15690/vramn823.
18. Novikov PV. Aktual’nye problemy farmakoterapii i primeneniya spetsializirovannykh dieticheskikh produktov dlya lecheniya redkikh (orfannykh) boleznei v Rossiiskoi Federatsii. In: Molekulyarnobiologicheskie tekhnologii v meditsinskoi praktike. Novosibirsk: Akademizdat; 2014. pp. 172–177. (In Russ).
19. Osipova LA, Kuzenkova LM, Namazova-Baranova LS, et al. Neuronopathic types of mucopolysaccharidoses: pathogenesis and emerging treatments. Current pediatrics. 2015;14(5):539–547. (In Russ). doi: 10.15690/vsp.v14i5.1436.
20. Baranov AA, Namazovа-Baranovа LS, Gundobina OS, et al. Managing children with gaucher disease: modern clinical recommendations. Pediatric pharmacology. 2016; 13(3):244–250. (In Russ). doi: 10.15690/pf.v13i3.1574.
21. Soldatov AA, Avdeeva ZhI, Alpatova NA, et al. Orphan medicines towards rare diseases treatment. Siberian scientific medical journal. 2017;37(2):27–35. (In Russ).
22. Barashnev YuI. Perinatal’naya nevrologiya. 2th ed., updated. Moscow: Triada-Kh; 2011. 672 р. (In Russ).
23. Namazova-Baranova LS, Deyev IA, Kobyakova OS, et al. Features of somatic pathology in children with low, very low and extremely low birth weight at different ages of life (review of the world literature). Bulletin of Siberian medicine. 2016;15(4):140–149. (In Russ). doi: 10.20538/1682-0363-2016-4-140-149.
24. Patra K, Wilson-Costello D, Taylor HG, et al. Grades I–II intraventricular hemorrhage in extremely low birth weight infants: effects on neurodevelopment. J Pediatr. 2006;149(2):169–173. doi: 10.1016/j.jpeds.2006.04.002.
25. Vincer MJ, Allen AC, Joseph KS, et al. Increasing prevalence of cerebral palsy among very preterm infants: a population-based study. Pediatrics. 2006;118(6):1621–1626. doi: 10.1542/peds.2006-1522.
26. Borghesi A, Massa M, Campanelli R, et al. Circulating endothelial circulating endothelial progenitor cells in preterm infants with bronchopulmonary dysplasia. Am J Respir Crit Care Med. 2009;180(6):540–546. doi: 10.1164/rccm.200812-1949OC.
27. Tkachenko ES, Goleva OP Detskii tserebral’nyi paralich — odna iz vedushchikh prichin detskoi invalidnosti sovremennosti. Eurasian Union of Scientists. 2015;(7–3):86–89. (In Russ).
28. Angsupaisal M, Maathuis CG, Hadders-Algra M Adaptive seating systems in children with severe cerebral palsy across International Classification of Functioning, Disability and Health for Children and Youth version domains: a systematic review. Dev Med Child Neurol. 2015;57(10):919–930. doi: 10.1111/dmcn.12762.
29. Adair B, Ullenhag A, Rosenbaum P, et al. Measures used to quantify participation in childhood disability and their alignment with the family of participation-related constructs: a systematic review. Dev Med Child Neurol. 2018;60(11):1101–1116. doi: 10.1111/dmcn.13959.
30. Bartlett DJ, McCoy SW, Chiarello LA, et al. A collaborative approach to decision making through developmental monitoring to provide individualized services for children with cerebral palsy. Phys Ther. 2018;98(10):865–875. doi: 10.1093/ptj/pzy081.
31. Savostyanov KV, Namazova-Baranova LS, Basargina EV, et al. The new genome variants in Russian children with genetically determined cardiomyopathies revealed with massive parallel sequencing. Annals of the Russian Academy of Medical Sciences. 2017;72(4):242–53. (In Russ). doi: 10.15690/vramn872.
32. Savostyanov KV, Surkov AN, Namazova-Baranova LS, et al. Clinical application of massive parallel sequencing in molecular diagnostics of hereditary diseases of glycogen accumulation in the children population of the Russian Federation. Russian journal of pediatrics. 2017;20(3):132–139. (In Russ).
33. Pozharishchenskaya VK, Davydova IV, Savost’yanov KV, et al. Genetic determination of bronchopulmonary dysplasia formation: pros and cons. Pediatric pharmacology. 2017;14(1):24–32. (In Russ). doi: 10.15690/pf.v14i1.1698.
34. Karkashadze GA, Anikin AV, Zimina EP, et al. Recent information on the pathogenesis and treatment of hypoxic-ischemic brain lesions in newborns. Pediatric pharmacology. 2016;13(5):452–467. (In Russ). doi: 10.15690/pf.v13i5.1641.
35. Bykov AT, Shaposhnikov AV, Malyarenko TN. Gut microbiota: its implications in human health, development and prevention of specific diseases. Meditsinskii zhurnal. 2016;(4):16–26. (In Russ).
36. Averina OV, Danilenko VN. Human intestinal microbiota: Role in development and functioning of the nervous system. Microbiology. 2017;86(1):5–24. (In Russ). doi: 10.7868/S0026365617010050.
37. Mikhaylova AP, Chenchenko DV, Shtrakhova AV. Microbiotic factor, health and stress-induced mental disorders. Bulletin of the South Ural State University series “Psychology”. 2018;11(1):75–87. (In Russ). doi: 10.14529/psy180107.
38. Global action plan on antimicrobial resistance [Internet]. World Health Organization; 2018. (In Russ). Доступно по: http://www.who.int/antimicrobial-resistance/global-action-plan/ru/. Ссылка активна на 10.09.2018.
39. Namazova- Baranova LS, Baranov AA. Antibiotic resistance in modern world. Pediatric pharmacology. 2017;14(5):341–355. (In Russ). doi: 10.15690/pf.v14i5.1782.
40. Sidorenko SV, Yakovlev SV, Spichak TV, et al. Strategy and tactics of the rational use of antimicrobial drugs in outpatient practice. Eurasian clinical guidelines. 2016. Pediatriya. Prilozhenie k zhurnalu Consilium Medicum. 2016;(4):10–20. (In Russ).
41. Ginzburg VV. The problem of obesity in the practice of pediatricians. Vestnik meditsinskogo instituta Reaviz. 2017;26(2):68–73. (In Russ).
42. Evdokimova EYu, Popova UYu. Obesity in children. Metabolic syndrome markers. Vestnik Soveta molodykh uchenykh i spetsialistov Chelyabinskoi oblasti. 2017;1(2):16–19. (In Russ).
43. Vinyarskaya IV, Terleckaya RN, Basargina EN, et al. The morbidity rate of diseases of the circulatory system in children in the Russian Federation. Russian journal of pediatrics. 2015;18(5):60–65. (In Russ).]
44. Minin AV, Pal’chik AB, Plotnikova SD. Factors affect on development and clinical course of ischemic stroke in children. Pediatr. 2016;7(4): 102–108. (In Russ).
45. Shkolnikova MA, Polyakova EB, Ildarova RA, et al. Syncope in children and adolescents. Journal of arrhythmology. 2017;(87):59–71. (In Russ).
46. Bayanova NA, Makoldina IM, Nabiullina VV, Panteleeva EV. Malignant neoplasms in the formation of childhood disability in the Orenburg region. Russian journal of oncology. 2013;(6):33–35. (In Russ).
47. Mirzayan EI. Peculiarities of general disability of children’s population in consequence of malignant neoplasms in the federal districs and administrative units of the Russian Federation in dependence on the appeals to the institutions of medical-social expertise in 2007–2011 years. Medico-sotcialnye problemy invalidnosty. 2013;(4):58–61. (In Russ).
48. Kuchma VR. The mini mization of the impact of information and communication technologies on the health and well-being of children. Hygiene et service sanitaire. 2017;96(11):1059–1063. (In Russ).
49. Kozhevnikova EV. Rannee detskoe vmeshatel’stvo kak pervyi shag k sotsial’nomu vklyucheniyu v zhizn’ obshchestva detei s invalidnost’yu. In: (Conference proceedings) Tendentsii razvitiya obrazovaniya: kadry reshayut vse: materialy X Mezhdunarodnoi nauchno-prakticheskoi konferentsii. Moscow: Delo; 2014. pр. 326–333. (In Russ).
50. Razenkova YuA. Key marks of early intervention concept development. Defektologiia. 2014;(6):44–52. (In Russ).
51. Rakhmanova NZ. Early intervention as guarantee of successful prevention of children’s incidence, deviations in development, social disadaptation and disability at children. Molodoi uchenyi. 2016;(9):1172–1174. (In Russ).
52. Sviridova OA. Early intervention as a socio-medical framework for the conservation of family and childhood. In: (Conference proceedings) Issledovanie sovremennykh problem obshchestva v kontekste sotsial’noi raboty: sbornik nauchnykh statei studentov i prepodavatelei. Moscow: Pero; 2017. pр. 94–101. (In Russ).
53. Katkova TV, Pyrkova SA. Organizatsiya okazaniya vysokotekhnologichnoi pomoshchi detskomu naseleniyu. In: (Conference proceedings) Razvitie sistemy kompleksnoi reabilitatsii invalidov, sluzhby rannei pomoshchi detyam s ogranichennymi vozmozhnostyami zdorov’ya, v tom chisle detyaminvalidam, i sotsial’nogo soprovozhdeniya ikh semei: sbornik materialov mezhregional’noi konferentsii. Samara: Vektor; 2017. pp. 119–125. (In Russ).
54. Moiseeva KE, Kharbediya ShD, Aleksandrova MN. Assessment of a state and system effectiveness of the organization of recovery treatment of children in the conditions of children’s policlinic. In: (Conference proceedings) Issledovaniya, razrabotki i metody v oblasti meditsiny i farmatsevtiki: sbornik nauchnykh trudov po materialam I Mezhdunarodnoi nauchno-prakticheskoi konferentsii. St. Petersburg: Professional’naya nauka; 2017. pр. 15–22. (In Russ).
Review
For citations:
Baranov A.A., Terleckaya R.N. On the Prospects for Child Disability Prevention Research. Current Pediatrics. 2018;17(6):426-433. (In Russ.) https://doi.org/10.15690/vsp.v17i6.1972