Development of Children’s Palliative Care in Perm Krai
Rezeda I. Islamova,
Nataliia V. Minaeva,
Svetlana P. Baranova,
Irina E. Berber,
Nataliia V. Dolgomirova https://doi.org/10.15690/vsp.v22i3.2579
Abstract
Palliative care as a system is presented in Russia for a little over 10 years. Moreover, such care in every region has its own local-specific scheme and infrastructure. This article presents the results the analysis of palliative care state and availability in Perm Krai, covers its strengths and weaknesses that are crucial for executive decisions-making and for further children’s palliative care development.
Supporting agencies: Not specified
About the Authors
Rezeda I. Islamova
Perm State Medical University named after Academician E.A. Wagner; Autonomous non-profit organization “Dedmorozim”
Russian Federation
Disclosure of interest:
Russian Federation
Perm
Disclosure of interest:
Not declared
Nataliia V. Minaeva
Perm State Medical University named after Academician E.A. Wagner
Russian Federation
Disclosure of interest:
Russian Federation
Perm
Disclosure of interest:
Not declared
Svetlana P. Baranova
Children’s Clinical Hospital № 13
Russian Federation
Disclosure of interest:
Russian Federation
Perm
Disclosure of interest:
Not declared
Irina E. Berber
Children’s Clinical Hospital № 13
Russian Federation
Disclosure of interest:
Russian Federation
Perm
Disclosure of interest:
Not declared
Nataliia V. Dolgomirova
Ministry of Health of Perm Krai
Russian Federation
Disclosure of interest:
Russian Federation
Perm
Disclosure of interest:
Not declared
References
1. Khartiya prav umirayushchego rebenka (Triestskaya khartiya). Moscow; 2016. 92 p. (In Russ).
2. Hospisy. Millionshchikova VV, Lopanov PN, Polishkis SA, eds. Moscow: Publishing House “Grant”; 2003. 280 p. (In Russ).
3. Zelinskaya DI. Pediatric palliative care. Rossiyskiy Vestnik Perinatologii i Pediatrii = Russian Bulletin of Perinatology and Pediatrics. 2016;61(6):7–12. (In Russ). doi: https://doi.org/10.21508/1027-4065-2016-61-6-7-12]
4. Order of the Ministry of health of the Russian Federation dated April 14, 2015 No. 193н “Ob utverzhdenii Poryadka okazaniya palliativnoy meditsinskoy pomoshchi detyam”. (In Russ). Доступно по: https://www.consultant.ru/document/cons_doc_LAW_179535. Ссылка активна на 26.05.2023.
5. Order of theMinistry of Health of the Russian Federation and the Ministry of Labor and Social Protection of the Russian Federation dated May 31, 2019 No. 345н/372н “Ob utverzhdenii Polozheniya ob organizatsii okazaniya palliativnoy meditsinskoy pomoshchi, vklyuchaya poryadok vzaimodeystviya meditsinskikh organizatsiy, organizatsiy sotsial’nogo obsluzhivaniya I obshchestvennykh ob’yedineniy, inykh nekommercheskikh organizatsiy, osushchestvlyayushchikh svoyu deyatel’nost’ v sfere okhrany zdorov’ya”. (In Russ). Доступно по: https://base.garant.ru/72280964. Ссылка активна на 25.05.2023.
6. Permskiy krai v tsifrah. 2022: kratkiy statisticheskiy sbornik. Territorial agency of the Federal State Statistics Service for the Perm Krai. Perm; 2022. 195 p. (In Russ). Доступно по: https://59.rosstat.gov.ru/storage/mediabank/Пермский%20край%20в%20цифрах%202022(3).pdf. Ссылка активна на 27.05.2023.
7. Minaeva NV, Islamova RI, Bazhenova MI. Outpatient Liaison Palliative Care for Children: Two Years’ Experience of Non-profit Charitable Organization. Voprosy sovremennoi pediatrii — Current Pediatrics. 2020; 19 (1): 46–56. (In Russ).
8. Voronova EA, Rudakova EA, Smirnova KA, Podluzhnaya MYa. Significance of register of incurable children for organization of regional palliative medical care. Perm Medical Journal. 2017;34(5):107–112. (In Russ).
9. Palliativnaya pomoshch’ detyam v Rossii: potrebnost’, sostoyaniye, kontseptsiya razvitiya. Savva NN, ed. Moscow: Blagotvoritel’nyy fond razvitiya palliativnoy pomoshchi “Detskiy palliative”; 2014. 99 p. (In Russ).
10. Baranova SP, Berber IE, Minaeva NV. Organizatsiya spetsializirovannoi palliativnoi pomoshchi detyam v usloviyakh statsionara. Aktual’nye voprisy pediatrii: Materials of the interregional scientific and practical conference dedicated to the 100th anniversary of Perm pediatrics. Perm; 2022. pp. 33–37. (In Russ).
11. Order of the Ministry of Health of the Perm Krai dated April 15, 2021 No. 34-01-05-390 “O vnesenii izmenenii v reglament okazaniya meditsinskoi pomoshchi detyam, utverzhdennyi prikazom Ministerstva zdravookhraneniya Permskogo kraya ot 23.12.2020 № СЭД-34-01-05-773”. (In Russ). Доступно по: https://minzdrav.permkrai.ru/dokumenty/101367. Ссылка активна на 27.05.2023.
12. Order of the Ministry of Health of the Perm Krai dated April 14, 2022 No. 34-01-02-477 “O vnesenii ismenenii v Prilozhenie 1 k Reglamentu okazanija palliativnoy pomoshchi detjam v Permskom krae, utverzhdennomu prikazom Ministerstva zdravoohranenija Permskogo kraja ot 23.12.2020 № СЭД-34-0105-773”. (In Russ). Доступно по: https://minzdrav.permkrai.ru/ dokumenty/258480. Ссылка активна на 26.05.23
13. Order of the Ministry of Health of the Russian Federation dated May 31, 2019 No. 348н “Ob utverzhdenii perechnya medizinskih izdeliy, prednaznachennyh dlya podderzhaniya funktsiy organov i system organizma cheloveka, predostavlyaemyh dlya ispilzovaniya na domu”. (In Russ). Доступно по: https://base.garant.ru/72283942. Ссылка активна на 01.01.2023.
14. Order of the Ministry of Health of the Russian Federation dated July 10, 2019 No. 505н “Ob utverzhdenii poryadka peredachi ot meditsinskoy organizatsii patsientu (ego zakonnomu predstavitelyu) medizinskih izdeliy, prednaznachennyh dlya podderzhaniya funktsiy organov i system organizma cheloveka, dlya ispilzovaniya na domu pri okazanii palliativnoy meditsinskoy pomoshchi”. (In Russ). Доступно по: https://base.garant.ru/72767874. Ссылка активна на 01.01.2023.
15. Order of the Government of the Perm Krai dated April 21, 2020 No. 97-рп “Ob utverzhdenii programmi “Rasvitie sistemi okazanija palliativnoy meditcinskoy pomoshci v Permskom krae”. (In Russ). Доступно по: https://docs.cntd.ru/document/570768554. Ссылка активна на 26.05.2023.
16. Metodicheskie rekomendatsii po voprosam organizatsii peredachi zakonnym predstavitelyam detei, poluchayushchikh palliativnuyu meditsinskuyu pomoshch' na domu, meditsinskikh izdelii dlya podderzhaniya funktsii organov i sistem organizma cheloveka. Polevichenko EV, ed. Moscow; 2021. 61 p. (In Russ). Доступно по: https://palliativemed.sechenov.ru/upload/iblock/5b3/8wnzv23zme06b1jm9oyd4e7tuahk7zsh.pdf. Ссылка активна на 01.01.2023
17. Аzbuka palliativnoy pomoshchi detyam. Savva NN, ed. Moscow: Publishing House “Prospekt”; 2020. 106 p. (In Russ).
18. Order of the Ministry of Labor and Social Protection of the Russian Federation dated March 27, 2017 No. 306н “Ob utverzhdenii professional’nogo standarta “Vrach pediatr-uchastkovyi”. (In Russ). Доступно по: https://base.garant.ru/71658254/. Ссылка активна на 27.05.2023
19. Order of the Ministry of Health of the Russian Federation dated December 20, 2012. No. 1183н (as amended by September 04, 2020) “Ob utverzhdenii nomenklatury dolzhnostey meditsinskih rabotnikov i farmatsevticheskih rabotnikov”. (In Russ). Доступно по: https://www.garant.ru/products/ipo/prime/doc/70244038. Ссылка активна на 01.01.2023
20. Order of the Ministry of Labor and Social Protection of the Russian Federation dated June 22, 2018 No. 409н “Ob utverzhdenii professional’nogo standarta “Vrach po palliativnoy meditsinskoy pomoshchi”. (In Russ).] Доступно по: https://base.garant.ru/72011724. Ссылка активна на 26.05.2023.
Review
For citations:
Islamova R.I., Minaeva N.V., Baranova S.P., Berber I.E., Dolgomirova N.V. Development of Children’s Palliative Care in Perm Krai. Current Pediatrics. 2023;22(3):246-253. (In Russ.) https://doi.org/10.15690/vsp.v22i3.2579
Views:
391
Email this article 
